Saturday, September 26, 2015

Information Accessibility

The seriousness of my health issues aside, I'm really loving how a lot of the health care systems are now using an online chart system to track patient care and as a patient, I have access to it. I feel empowered, reading my own test results. I loved looking back and reading the notes my midwife took throughout my labor with Kaylee and similarly, I like having the details, the down and dirty data. I think it's the scientist in me. I can accurately educate myself to a level of detail that a doctor might not delve into (even though I desire it, it's honestly my biggest gripe with standard medicine. This is why I loved my midwife in Washington, he would send me research articles and really get into the nitty gritty once he found out I had a science background. It made me feel like a valued and contributing member of my own healthcare, rather than a marginalized idiot)

Henry Ford Health Systems uses MyChart, which seems to be standard. I think I have a crazy number of accounts with them now from all of the different hospital systems I've been seen by (from back in Washington especially).  MyChart is why I chose to go to urgent care further from home when I had the cramp and it's why, when given the choice of ER, I chose to drive 40 minutes away. I had not heard good things about nearer hospitals and since my prenatal care was within Henry Ford, I found it prudent to have my whole health care team reading from the same page.

I checked  MyChart tonight and saw the results from Vascular Imaging (right above my negative Gonorrhea test, thankyouverymuch). My clot was found in the right peroneal vein, it was called a total occluding acute thrombosis. Very shallow google research informs me that this is a common spot to get a clot. Obesity and pregnancy are my only two risk factors. I'm around the same weight as my previous pregnancy (only 10 lb heavier, really) and didn't have an issue then. But I am thankful things were caught in time.

Interestingly, given my symptoms, I had low probability of my symptoms being a DVT (deep vein thrombosis). My only symptom was pain. I had no swelling or edema, recent long distance travel or immobility. Go figure. This low probability was why they chose to do the D-Dimer test first, rather than jump immediately to ultrasound.  (I found a professional grade Merck manual on the subject, it's been fascinating to read!)

Over the past week I had been breaking down over random things. But reading this very clinical report on what I've been diagnosed with and what the prognosis and expected risks and probabilities are, it's actually quite reassuring. Eric and I both agreed we wish we had this last week. It would have eased our minds significantly.

Now I can't wait for the results of my CT scan to be posted to my account so I can get more specifics on my PEs (pulmonary embolisms)

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