I mentioned, in the same paragraph no less, that I'd been having a cramp in my leg combined with out of breathness.
Well. It wasn't a muscle cramp, tear or strain, like I thought.
Eric finally had enough and made me go to urgent care on Sunday. I drove myself in, arriving an hour after they opened (11am) to find I was the only one there. Sweet! I got seen immediately and related my symptoms. The doctor on call asked about shortness of breath and I did say I'd been having trouble walking up stairs. I think her face paled and she told me that I was going to the ER for suspected blood clot. She asked which one I preferred. We're in this healthcare desert so I could travel to several, all about 25 miles away. I chose to stay with Henry Ford.
The clinic called ahead and gave me paperwork to expedite my ER admission. I drove myself and called Eric and my Mom to give them a heads up. I walked into the ER and again, was seen right away. Sunday morning was slow, apparently, or I was near top of the triage priority. I got brought back and the nurse practictioner explained what the plan was going to be.
The first thing was they were going to do the D-Dimer test with my blood. It's the least invasive test for blood clots(and probably cheapest) but you can test false positive if you're pregnant. If I was negative, that was awesome.
I was positive.
Next I was sent up for an ultrasound of my legs. They were looking for a blood clot, or deep vein thrombosis.
The tech found a blood clot. When I was wheeled back down to my space in triage, the nurse practitioner kind of laughed, and said, "You're staying with us tonight." In other words, they were admitting me.
Blood clots are serious business. Pregnant women are at a higher risk for blood clots due to excess clotting factor in their blood. Several doctors (both General and OB) explained that there was a risk that the clot broke off and moved to my lungs (where it could cause a pulmonary embolism if untreated) but the treatment was the same. The ER was declining to perform a CT scan because they were just going to treat me anyway if a clot was found in my leg. If one hadn't been found in my leg, I was going to CT next.
I was given a shot of blood thinner and sent up to my room. My phone was getting low in battery so I called Eric and he arranged for his sister to bring me a charger and a book to read. He was busy keeping Kaylee occupied and we both thought that a hospital visit at night would make bedtime a gnarly mess.
I settled into my room and enjoyed a brief visit from family. Then I settled in for the evening. My only hospital experience previous was when I was helping my friend Cheryl with her labor. You get checked very regularly by nurses when in labor at the hospital and I guess that's labor specific because I was not checked or bothered regularly and was basically left to my own devices with instructions that they didn't want me wandering the halls since I was on blood thinners.
It did not take long for me to go stir crazy. Thankfully the hospital had free wi-fi. I called Eric after Kaylee was asleep and we chatted. Then I was in for a restless night. I slept for 3.5 hours before tylenol wore off and my leg pain was back. I was debating calling the nurse when an alarm started going off in the hospital. I figured she had to be awake anyway, so I called and asked for more tylenol. Apparently there was a fire drill. At 3:30 am. By 4:30a the tylenol was working its magic so I started trying to get back to sleep. At 5:30 a resident came in to talk to me. I was ready to kill her. I rolled over but at 6 a patient transporter came to get me. I was heading down for an echocardiogram to make sure my heart looked good.
I zoned out for part of the morning and people were in and out. The big thing was the doctors changed their minds. They still wanted me to have a CT scan to check for clots in my lungs, even though the treatment wouldn't change.
I went for my CT scan around 1pm. It didn't take long and the contrast dye made me feel like I was peeing my pants for a brief moment and then I had a moment where it felt like I was struggling to breathe but it passed.
My midwife came by to talk to me and that felt really nice that she took time in her day to do that. She splits her time between being at this hospital (why I chose it, so all my care was under the same account) and being at a location closer to me. I really like her and I'm hoping I can still be somewhat under her care for this pregnancy.
I called the home birth midwife and canceled my appointment for today (tuesday). I've effectively risked out of home birth, which REALLY sucks but there's nothing I can do about it.
The obgyn came back with my CT results. I had multiple clots in both of my lungs. It was likely the source of my out of breathness. After she left I had a minor breakdown and just cried. Thinking about how close I came to potentially dying is nervewracking. My midwife came back to talk about that too, gently and jokingly scolding me for going all out with the risk factor, hah. She also got me in for an appointment with the Maternal Fetal Medicine specialists. All of my appointments now are going to be at the hospital. No choice in the matter, but I may be able to alternate and keep seeing my midwife.
It's weird. The pregnancy is high risk, but me laboring is not, because I'll be pulled off of the blood thinners for that. I just don't know if the OBs are going to be super controlling about timing or if they'll let me go into spontaneous labor (my desire). I absolutely cannot be on blood thinners if I need a C-section, but the plan is that I stay on my current medicine until 35 weeks, then switch to heparin, which can be easily and quickly reversed when the time comes for labor.
Eric came down to the hospital and brought Kaylee. It was so nice to have them with me and Kaylee definitely missed me. She was very cuddly but also fascinated by my IV and the bits of blood that had leaked a little. You could see the little gears turning when the internal medicine doctor came in to talk to me and listened to my lungs with his stethoscope. She plays with her play stethoscope at home and does similar things.
All of the doctors were basically agreeing that I was clear to be discharged at that point. But we also had to talk to the patient advocate at the hospital about my medicine cost. Even though Eric has a great job, and an arguably good insurance policy, my medicine will cost us $3000 for this first month's supply and $2000 for next month (when we meet our deductible) and after that will just be a copay. Until January, when it starts all over again. Of course, some of this might change as we pay for the hospital stay. The hospital pharmacy only had 10 doses on hand. For me, that's 5 days worth. It was $895.
If I was on medicaid, it would be free. Thanks insurance companies, screwing over the middle class. Never have I wished more for single payer insurance. We can pay it. We're not going to be broke because of it. But it certainly affects how we had budgeted. I can't imagine how I would be able to get my medicine if Eric made a little bit less.
After getting a flu shot, I was officially discharged at 6 pm. I am forbidden from risky activities where I could fall and experience an internal bleed.
So no more riding for this pregnancy. I am going to go crazy. I did decide that I'm going to ground drive Gwyn, and maybe get her working on the farm and doing the arena dragging and pasture dragging. That would be something we could do together. I have also offered her for lease, so she continues to be ridden, per the suggestion of Jim, my old dressage trainer.
I don't think Eric has fully process this. We were going to have a heart to heart after Kaylee went to bed last night, but I laid down and just passed out, I was so tired. He doesn't have anyone to talk to about this stuff except me, so when something happens to me, he's stuck. I have my online group of moms and this place to get my verbal vomit down and deal with shit. He doesn't have that outlet.
All in all, it was a crazy Sunday/Monday. I'm home and that feels so good. My health issues were found before something more serious than a leg cramp cropped up, and I'm keeping myself healthy for Babydos.